TSC Alliance® and Ramesh and Kalpana Bhatia Family Foundation Announce New TSC Research Collaboration
DALLAS, TX, July 28, 2022 – Tonight during the opening of the 2022 World TSC Conference in Dallas, the Ramesh and Kalpana Bhatia Family Foundation announced a new collaboration with the TSC Alliance, working together to uncover biomarkers, test new treatments and connect researchers with families to better address TSC-Associated Neuropsychiatric Disorders (TAND), which impact nearly everyone living with tuberous sclerosis complex (TSC). The $2.5 million foundational gift is the largest single donation in the TSC Alliance’s history.
TSC is a rare genetic disorder that causes tumors to grow in different organs and can impair their function, primarily the brain, heart, kidneys, skin and lungs. Changes in the brain caused by TSC have the biggest impact on quality of life, from seizures and developmental delays to intellectual disabilities, behavioral challenges and autism.
This new funding will create “Anya’s Accelerator,” which will focus on furthering TAND translational research. TAND includes a wide range of cognitive, behavioral and psychiatric challenges linked to the disease’s effect on brain function. Autism spectrum disorder, intellectual disabilities, neuropsychological deficits, aggressive behaviors and more can severely affect people with TSC and their families. However, much is still unknown about TAND issues and how to effectively treat them, hence the need for more targeted research.
“The TSC Alliance is incredibly grateful to the Ramesh and Kalpana Bhatia Family Foundation for this historic donation,” said Kari Luther Rosbeck, President & CEO of the TSC Alliance. “We know TSC-associated neuropsychiatric disorders are incredibly challenging for people with TSC and their loved ones, and this funding will give us the ability to start finding answers and, hopefully, identify effective interventions.”
”Clinical trials for treating TAND are challenging for many reasons, particularly because TAND affects different people in different ways,” explained Steven L. Roberds, PhD, Chief Scientific Officer at the TSC Alliance. “This program will work to overcome these challenges by developing ways to measure the most impactful aspects of TAND for each individual and identifying biomarkers to enable targeting of specific treatments for treatment of specific individuals.
The three-year “Anya’s Accelerator” research program will focus on three major goals:
About the TSC Alliance
The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. It drives research, improves quality care, works to increase access and advocates for all affected by the disease. For more information, visit tscalliance.org.
About the Ramesh and Kalpana Bhatia Family Foundation
The Ramesh and Kalpana Bhatia Family Foundation, founded in 2006, is a private family foundation established by Ramesh and Kalpana Bhatia. The Foundation is dedicated to making an impactful change around the world by funding innovative solutions and programs that enrich communities and serve the common good. The Foundation’s grant making focuses on local, national, and international organizations that support medical & healthcare research, education, mental health, intellectual and physical diversities, human rights & social justice, women & girls’ empowerment, and emergency responses. www.rkbhatiafoundation.org.
Senior Vice President, Strategic Communications